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Wednesday, May 13, 2009

Celiac, Crohn's Disease and Fibromyalgia

Thursday, May 07, 2009 1:23 PM
People with celiac are misdiagnosed as something else up to 97% of the time. Celiac disease is an auto-immune disorder triggered by the proteins in wheat, barley, and rye, and treatment for it is a life-long gluten free diet.

I tried a gluton free diet years ago because of an old Chinese man that had his own shop at the persuasion of a friend. It was just too expensive at the time.
Now the the book coming out from the chick on the view, many are talking about it now. She also gives great references in her book  to other sites and cookbooks for gluton free diets. The foods are also available in a much bigger variety and wider supply then before. You can even order gluton free at many restraunts when you go out to eat

I think its worth looking into if you have any auto immune disease myself. It cant hurt any. You might also try cutting out sugar for awhile. My son suffers migraines and IBS. We took sugar out his diet just 2 weeks and he hasnt suffered as severly since. Those 2 weeks he didn't suffer at all. Sugar also seems to aggravate my chrons/colitis.

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The first online resource dedicated solely to providing the latest, most reliable information on celiac disease and gluten-free living. - http://www.celiac.com/

My Google library with links to references and glutton free cookbooks - My Google book library



http://www.youtube.com/watch?v=UH6qY-qtLRg

Dr. Vickery discusses Celiac and Crohn's diseases and the changing face of Fibromyalgia using the Two Edged Sword Diet and Platinum Essential Amino Acids Plus. More information is available at fibromyalgiacure.com.

 
 

Girls Ruleand we always will! 

--- Live your life in such a way that when your feet hit the floor in the morning, Satan shudders and says, "Oh shit...she's awake!"

KEEP UP WITH ME:

BLOG = http://blogs.myspace.com/lineblack MSN CHAT = lineblack@live.com TWITTER = http://twitter.com/lineblack 

Cheaper to die in the US then to live!

Thursday, May 07, 2009 12:18 PM
Medicare says that because hubbys job insures more then 100 people his insurance is now primary. His insurance wont pay for anything pre existing until after October 9 of this year. Medicare will not allow me to drop his insurance. Since his is now primary, they only pick up certain deductables based on their guidelines, which so far, is not much

They feel that unless my medications are life savings, such as needed for a transplant or something, they wont pay for it. Its cheaper to allow me to risk death or just remove  my colon then spend up to $10,000 a month to save it. They also feel they will not pay for anything experimental or anything that's not SPECIFIC to my illness. You know how like with FMS you might try an antidepressant and for some it helps with the pain. Well they don't feel that way

We owe thousands and thousands of dollars right now just from deductables. Even with medicare part D paying my meds, its so many and so many over the counters I still have to get, its easily running us $50-$75 a week.

Today another tooth crumbled and I almost choked on it. It was just Terry and I here and I never taught him to call 911. I was taking my meds and the tooth just crumbled. Now my throat is more sore then ever before and there are little pieces of tooth that keep breaking. Medicare wont pay for my teeth to be removed either.

I don't qualify for state aid, medicaid or anything else because my hubby works. Yet we cant even afford HBO on cable. We have no credit cards, no car payment and the only "luxury" we actually have is the Internet. Which I consider a must as its the only way I have of getting to the outside world

It would be cheaper for me to die and get buried them to try to keep me alive and healthy. I am really getting tired of all this fighting just for what seems to me a basic human right. The US cares more about Oprahs sick dog then they do for me
 
 

Girls Ruleand we always will! 

--- Live your life in such a way that when your feet hit the floor in the morning, Satan shudders and says, "Oh shit...she's awake!"

KEEP UP WITH ME:

BLOG = http://blogs.myspace.com/lineblack MSN CHAT = lineblack@live.com TWITTER = http://twitter.com/lineblack 

Medical update: is the fight over?

Tuesday, April 28, 2009 9:03 AM

Current mood:  peaceful
Category: Blogging
I wasn't going to say anything but keep living in my peaceful world of denial but my oldest had me face up to reality. Yup, the oldest, the one from that planet calls TEENS, send me through teenhell daily and has mastered the act of how to be AND TEACH OTHERS the teenazzholeness craft

I speak more about my FMS as that is what bothers me more then anything all the time. I also have ulcerative colitis. Which seems it might be chrons or intermittent colitis. When I got my colonoscopy the other day, it confirmed that I also still have gastritis, gerd and esophagitis. Which explains why I lose my voice every 5 minutes and sometimes for days

Now, I have been dealing with this for as long as I can remember. I always knew I had mucas stools, dirrhea, pain, blood and other happenings. I was always told as a child nothing was wrong, but I was a hypochondriac.

When I turned 19 I met my husband. We decided that that was no life to lead and we would find out what was wrong, fix it and I could live a life like everyone else. So we started going to every doctor we could find. The more doctors we saw, the more illnesses I was diagnosed with. I was not OFFICIALLY diagnosed with the name colitis until I was about 29. Before then they knew something was wrong, they just didn't have a name for it

Now I am 43. Each year has just gotten worse and worse. It has really gotten worse after each child. Yet I always seems to bounce back. With this last baby I have just been unable to. I can always find a month or 2 with peace but these last 5 years I have not had 1 hour of peace with my colon

So last week you know we had the house inspection (I have a story for that too will do later). We were cleaning and what not but I felt worse then usual. I thought it was because I had been bleeding so bad the last months I was just tired. After almost fainting I decided it was time to try to rest no matter what. That night we went to my sons 5th grade ceremony and I said I was staying in bed 1 entire day the following day. Well I didn't have a chance to

When I woke up that morning, it was to the voice of one of my doctors on the phone. She was begging me to come in. I had also did some upper bowel thing a couple of days before and my colon was so enlarged it had people running in every direction. I told them I couldn't stay as I had 4 kids and my hubby had to go work. With these phone calls that day, so many of them and her being so persistent I thought maybe I should listen. They always tell me I am sick but this was different. So I agreed to go in

Turns out that my entire colon is pretty much shot to heck. The little part that isnt is already diseased so they want to take out anyway. Even if I get the entire thing removed, because I have intermetent of chrons, the bowel that's left probably will get infected but that should be years down the road. I should be able to manage it with drugs for now. I have been on steroids for so long now, even their highest dosage is barely affective. After 4 days on IV dosage, I manage to have only 1 stool that was not dirrhea and still the blood just will not stop

That is where we stood. I just was in disbelief. My GI came in one morning and he was so sad also. He refused to believe it himself and put in 2 calls. One to chief of surgery somewhere, and the other to a friend of his, Dr Elliott

He sat in my room on a call and they discussed me for what seemed like almost an house. He told his friend I had 4 kids, I had been fighting this for years and once I had decided to have my lats baby, the others doctors just refused to treat me. (I think I am the only person we all know that has had 4 children with the illnesses I have so its a big thing) My GI is the guy I had prayed about. I truly believe that he was sent to me by God and he is aware that I believe that. He is the greated doctor I have had in years. Even knowing my battle is an up hill one, he still tries, he still fights for me and most of all he knows me. He is my only doctor that knows my name, I am married and have 4 kids WITHOUT LOOKING AT MY CHART. Ok, sorry, got off track. I just so love him!

His friend is a genius in his field. So they came up with a treatment for me that he felt would work. My doctor was so excited he was jumping up like a little kid haha. The only thing was one of the meds was experimental and would it be covered under my insurance. So he started me on tests right away and the drugs taht we knew were covered while we waited

To make this longer story...less longer haha, it was not approved. Medicare has now made my husbands insurance primary. His insurance will not cover anything pre existing until October 9th of this year. So medicare wont even pay their dedictables or my own. After 2 days of being in the hospital medicare already sent a bill for over $1,000 for my part and would add to that. The drugs I needed were $7,000 - $10,000 per month and medicare or blue cross would pay. I dont qualify for anything else, any state or federal help. I dont qualify for any colitis/chrons studies I have fms also and the symptoms are too similiar.

This is where I am right now and the reason for my blogging. My son and hubby says well, now we just have to wait. I am thinking wait for what? We know whats going to happen. In June I will be going in to lose my colon and come up with a colostomy bag. Something else to care for and STILL be sick from the chrons, fms, etc. Then I remember why I had not fallen completely apart

Remember I had taken imuran for months before. It was working great but it left me prone to the flu, strep throat and everything else. i was sick for the entire 4 months I was on it from one thing or another. Yet my colon was doing much better. So this is what they released me on. On a smaller dosage with another medication to boost it. So I was STILL on something.

If this works, I can stay on it endlessly. If it works even for a short while, I can stay on it until after october when blue cross kicks in, have the surgery and it will be covered. Maybe I can even make it 2 more years and get into one of those programs where they are regrowing organs. The posibilities are endless. The possiblities God has given

There is one other hitch though. No one wants to pay for that either. They feel I am a lost cause so why bother. They just want my colon out so they can stop paying for these drugs. So the pharmacist if faxing my doctor again to see if they can now get blue cross to pay for it since its not actually a colitis med. So I am waiting

I need prayers. I need prayer that my colon will not rupture before June. I need prayers that I dont have to spend another week in the hospital and risk hubbys job. I need prayers that this medicine works and that maybe I can even find a remission. I need prayer to just remember to have hope. To remember there are still posibilities. To remind me of God

Can my road of fighting be finally coming to an end? Nope. One reason is because God gave me people to ahve my back. The other reason is beause there is no end. As long as I wake up another day, with a colon or not, I have won. There is no end for me. I woke up again today. I had coffee today. Today is just the BEGINNING...again.

Here is a pic of what the bag will look like and 1 persons way of caring for it http://blogs.healthcare.com/leemega1/2008/06/21/photo-set-2-living-with-ileostomy/

bag = http://ucstory.wordpress.com/files/2008/05/ib-14.jpg
stoma = http://ucstory.wordpress.com/files/2008/05/ib-1.jpg

BTW, EVERY woman I know that has a bag has lost their relationship. All but one but I lost touch with her years ago. First their hubby cheats, then leaves. Or in one case, they live together for money reasons and just a silent understanding he cheats. That is my other concern. Yet I know if hubby leaves after 25 years its just how its meant to be. Pray for me
 
 
 

Girls Ruleand we always will! 

--- Live your life in such a way that when your feet hit the floor in the morning, Satan shudders and says, "Oh shit...she's awake!"

KEEP UP WITH ME:

BLOG = http://blogs.myspace.com/lineblack MSN CHAT = lineblack@live.com TWITTER = http://twitter.com/lineblack 

 
 
 
 
 
Animated Stationery@

The inspection is over!

 
Tuesday, April 21, 2009 2:55 PM

Current mood:  exhausted
Category: Blogging
The follow up inspection was today about an hour ago. The same man came back with the owner of the house but this time Anthony was home. I was in the bed and refused to come out my room as I was afraid I would curse out the fat, prejudiced inspector.

They came in the house, he looked at the light over the washer to see if repaired, came upstairs to check the kids window and to look at the smoke alarm, again. After a lot of "Thank you sir", and "ha ha" and all that crap, the fat bastard left. He didn't say anything at all to Anthony, just as I told him. He didn't even say hi to me or dare step in my room

The smoke alarm was the same one from before when he was talking crap to me. We still had laundry being done in various stages over the first floor. All that crap that man talked to me and made me cry, he said nothing to my husband, not one word. Which I said would happen

So after a month of nerves, a month of fuming at this stupid man and still being upset the owner let the jerk talk to me like that, its finally over. At least until next year.

Thanks for all your prayers and well wishes.
 

Girls Ruleand we always will! 

--- Live your life in such a way that when your feet hit the floor in the morning, Satan shudders and says, "Oh shit...she's awake!"

KEEP UP WITH ME:

BLOG = http://blogs.myspace.com/lineblack MSN CHAT = lineblack@live.com TWITTER = http://twitter.com/lineblack 

How mypsace saved my life

Wednesday, April 01, 2009 1:11 AM

Current mood:  exhausted
Category: Blogging





I have been putting off this one for many reasons. Mostly because I was ashamed. I am constantly telling people how much they are worth, hang in there, on phone, Internet and email all hours of the night or day if someone is thinking of taking their life and here I was, right on the edge for so very long.

Once I faced the issue, physically I was unable to type without much pain. Mentally I have been unable to think clearly as you can see from previous blogs and Julie thinking I have taken up drinking haha. I finally decided I must just get it out as so many contact me online and off about such stressful things in life. Not just FMS but so much stress and I feel like a fraud telling them how much they are worth while all the while praying I would not wake up tomorrow. I will try to keep it short but you know me.

I am in such pain now for the last 5 years its insane. I think its more with the colitis being out of control for the past 8 years and now the FMS maybe just can no longer be contolled. Either way, I have tried everything I know how. Including going herbal last year, if you remember that. It did NOT turn out too well.

I just gave up and felt the only way for me to find peace and for my family to be happy was to just die. I no longer cared about eternity in heaven. I just could not father another 40 years like the last 40. I felt my entire life sucked from birth. Born unloved and unwanted into a cruel world to live a life of pain. Why stay here?

I have made it my mission to make my boys self sufficient. I started recording Rachel Ray, teaching them to cook, clean, wash clothes and care for the baby. I put them on a strict academic schedule and had planned their schooling out until graduate school. I was trying to just do all I could so they could make it as a family and not count on anyone. As no one has been there for them anyway so why would I think anyone would "rally" once I died.

The only problem was AJ. He was supposed to have his drivers liscence by now and after I knew he was graduating and the baby was in school, I could leave this crappy world and be happy. This boy just refused to take the class. Then he just refused to pass any classes at all. I needed him in college at 9a , so he can drop the baby off at school, be able to pick him and the boys up then he can work part time or take another class 2 nights a week. As I said, I had this totally planned. I researched his classes, professors, costs and everything for almost 3 years.

So one night I am at the computer seeing what I need to do for him. Looking up his classwork online and what not. I was born without patience so I always have something else going while I am waiting for a page to load. That day I think I had myspace open and playing Mafia or something. (I am sure I am not remembering this correctly but it ends the same)

There was a gal that played the same app and maybe she saw FMS in my nick. She messaged me and I just spilled my guts. You know how sometimes it easier to talk to a stranger as they don't know you and you feel you will never see them again. So why not just get it off your chest. That's how I felt. I had no idea who this gal was. She was not one of my regular friends here, not a friend offline and I never saw her before.

The next morning or so when we woke up there was a burning smell throughout the house. We checked everything to find all was ok and couldn't figure it out. Later that day when the boys went to make their beds Taylor noticed a burned spot on his comforter. I was so upset as it was brand new. His first new comforter of his own without holes or anything. I had not paid the water bill for 2 months to get us all new WARM bedding.

While we were trying to figure out what happened I realized it was a burn. I looked around and saw their desklight in the chair. It was half melted. My knees buckled and I began to cry. Fire is one of my worse fears. Not because I am afraid of dying but because it can be so painful. What if you burn alive? What if you live!!??

I knew a girl that got burned in a fire when we were kids. She lived a few days and everyone said the pain was so so bad. She kept requesting to see me and I was afraid. When our teacher finally talked me into going, even said she would go with me, the girl died. I could only think she had been asking for me since the accident and I didnt go. She was in massive pain, she needed me to just be there. Nothing more then to be there, and I was afraid. Afraid I couldnt comfort her. Afraid I would cry after all the adults kept telling me not to, that it would upset her. I WAS LIKE TEN! How was I not to cry???

After that I never wanted another person to hurt. If I didnt feel I could help them, I figured it best that I was jsut not around them at all. If I did try to help, I gave 110%. I took their problems as my own and it began to disrupt my own life. I didnt know how not to feel their pain. If I feel I cant help, or if I am hurting someone, including my family and friends, I would rather just not be around at all. If the heartache hurts this badly, I could not imagine a fire.

When Anthony got home he said he woke to the smell. Who usually smells nothing at all. Even if he is sitting in the kitchen and a pot is burning, he doesnt smell it. He said Taylors cover had fell off his bed. Earlier Tyler had moved the light from his nightstand to the desk. So the cord was stretched across the room. The comforter fell on the light, knocked it to the CARPETTED floor and then covered it up.



The only thing that I was living for, my babies, couldve died. How crazy is that. On top of which for them to die the worse way I can imagine and have feared all my life. I am planning for years to die only to have them die. I just could not think. I just cried. You have no idea how I cried. I cry a lot! My face always looks like someone beat me up. That day I looked like I had an allergic reaction to something.

Now I know I was shown something so powerful. Something I still have not fully understood as its too painful and scary for me to look at. I do know that there is no way I will think about taking my life again ever. I dont care if I live to be 110 I will praise God for every year of it.

We are all born with a thorn in our side. We have no idea what that thorn is. I think mine is just to be in pain. Paul asked 3 times for his thorn to be removed and it was not. I guess I will just have to LIVE with this pain. I am blessed to have it to have me into the person that I am today.

I still play chess with my kids, we take walks when we can, we watch movies, we talk, we laugh, we dance, we sing, we cook, we read...WE LIVE. I just didnt see that. I just saw that we could walk further, we could read 2 books instead of 1, we could play longer if my hands would bend, we could watch more movies if I could just sit up longer. I saw all the negative in everything.

This girl that messaged me I know is my angel. I have had many thoughts before, many down moments. I think Julie has had to clean up many a pity party after I have been so down. Had this girl, Shelly, not talked to me that one night, not taken one moment out her day to not just message a stranger, but to get personal. If she had not done that, I dont think I wouldnt thought the same way.

I hope this all made sense. I hope that it helps someone else. I wish I had known Lisa. If you dont know about her, you should. Lisas Story http://www.youtube.com/watch?v=QnqFEeDD_nk EVERYTHING this man says about his wife is how I feel and more. EVERYTHING!

I am going to doctor in 12 hours. I always refuse pain medication as I am afraid of become addicted. Today I am going to get whatever it is that they want me on. I will take it properly and I will pray for relief. I will pray I dont become dependent on any drugs and I will pray for all those I know that have. I simply must address this pain. I refuse to think about taking my life again. I will not give into this pain.

My feet swell, tingle, fall asleep then burn. My hands can hardly close. My fingers ache to just hold a toothbrush. My back feels as though its on fire. My hip burns and aches. My knee is always frozen. My heart pounds so hard that I am exhausted all the time. My stomach cramps all the time. I am nauseas all the time. I wake up at 7a with diarrhea until 1p like clockwork. My chest feels as though someone is squeezing it all the time and I cant get a full breath. I lose my voice at least 3 days a week and its so painful to try to talk. I have a migraine at least 2-4 days a week. My shoulder hurts so badly that I have to give it its own pillow. My skin hurts so badly that I can only lay on very worn bedsheets and wear cotton t-shirts worn with holes. This is just what I can think of from today.

My life is wonderful, just full of pain, I know that now. I am blessed, I am loved, I love and I love life. Thank you
 
 
 

Girls Ruleand we always will! 

--- Live your life in such a way that when your feet hit the floor in the morning, Satan shudders and says, "Oh shit...she's awake!"

KEEP UP WITH ME:

BLOG = http://blogs.myspace.com/lineblack MSN CHAT = lineblack@live.com TWITTER = http://twitter.com/lineblack 

Incredimail - still free and much more to offer!

Sunday, March 29, 2009 10:54 PM

Current mood:  anxious
Category: Blogging




(ladyline@gmail.com - put HUMOR in subject to get added to my mailing list)

I went to update
incredimail and they have some new toys! They have a free addon called HIYO for MSN where you can insert all the same emotions, sounds and what not that you use in email! MSN works with Hotmail, live, yahoo, gmail and others. Check their website and add me when you install (MSN also has a new look too. If you already have it, go update)


You can also use your Hotmail account now to SEND mail. So there is no reason to have to wait on a browser to load, you can save all your mail to your PC and also use all the incredimail toys
 
Annnnnnddddd there is now a free skin maker. You can put your own pics on it or make whatever you want
 
Check them out. I just spent 45 minutes inputting new letters while I watched Private Practice haha. They have lots of new ones and its always great links to people that love the program and make tons of stuff you can download free like this one. You can always RIGHT CLICK and SAVE mine too

After all these years of using this program these people should pay me! Hahaha
 
 
 

Girls Ruleand we always will! 

--- Live your life in such a way that when your feet hit the floor in the morning, Satan shudders and says, "Oh shit...she's awake!"

KEEP UP WITH ME:

BLOG = http://blogs.myspace.com/lineblack MSN CHAT = lineblack@live.com TWITTER = http://twitter.com/lineblack 

 
 
 
 
Animated Incredimail

Internet Explorerer (IE) or FireFox (FF)

 
Sunday, March 29, 2009 10:48 PM

Current mood:  anxious
Category: Blogging
I have used Firefox for
Years as its more customizable and safer. I actually had so much on it at one
Time that it took a full 2 minutes to load up haha. My weather, my news feeds,
Colortabs, oh man so much stuff.

 

IE has done and
Upgrade! It looks wonderful so far as I can tell. I never disliked IE, but again
FF was just more customizable. I might be willing to give all that up for speed
And the same safety. Give it a try and tell me what you think.  What addons do you use in each?
 
 

Girls Ruleand we always will! 

--- Live your life in such a way that when your feet hit the floor in the morning, Satan shudders and says, "Oh shit...she's awake!"

KEEP UP WITH ME:

BLOG = http://blogs.myspace.com/lineblack MSN CHAT = lineblack@live.com TWITTER = http://twitter.com/lineblack 

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